I know we have requested prayer because of illness countless
times. It probably seems like there is
always someone sick. I thought I would
type out a list of practical, in the natural reasons of why we are often
sick. By we, I mean Jesse, Asher & I
because until the end of Dec. when Joel & Calla caught mild colds, they had
been perfectly healthy for over 10 months!
I believe God is bigger than this list, and I believe He
wants us healthy, perhaps this list will give you clearer insight as to how to
pray specifically for us, and to help others understand a little bit what life
is like for us since Asher was born.
1)
Jesse and
I are sleep deprived. We hardly get a
full night of sleep. Asher wakes up
constantly for various reasons. One of
them is thought to be “just part of CHARGE syndrome”, no one knows for sure why
kids diagnosed with CHARGE have this trouble of sleeping! We (or at least one of us) for over 2 years
has waited up to give Asher his heart meds – 10pm at the earliest, often
11pm. There is never a “Let’s just put
the kids to bed and sleep” sort of night!
Healthy eating, exercise and supplements will never be a substitute for
sleep!
2)
We try not to let this consume our lives, we
trust Asher to God, however, always running in the back of our minds is the
stress that comes with the responsibility for caring for Asher’s every
need. We make critical, sometimes life
and death decisions for Asher often.
This type of stress does not help our bodies fight off illness.
3)
It is now believed that Asher may have another
gene sequence that causes lack of growth (on top of the growth problems faced
by kids with CHARGE) as well as a lack of a properly functioning immune
system. He is considered to be medically
fragile and immune compromised. He picks
up everything. His body and heart are
just not strong enough to fight everything off!
So, we limit our times out of the house, and stay away from people who
are sick (if we know ahead of time)…otherwise, we are always “taking our
chances” if we are out and about.
4)
We visit 3 different hospitals frequently for
various follow up appointments. That is
on top of the amount of times we are in and out of the doctors office. These aren’t places I would suggest to
frequent with a medically fragile child.
ESPECIALLY at the age he is at, wanting to touch, taste and explore his
surroundings! We do our VERY best to sanitize,
change our clothes, even wear masks sometimes but those germs are pesky! People think that I am overboard for not
touching various things (including magazines!) in hospitals and offices, but
honestly I am trying to keep us well!
5)
This one is just the good old fashioned – People
STILL leave their houses when they are sick!
They still don’t wash their hands well enough, and they are still out
there spreading their germs.
Bottom line is we are run down. We do our best but we are run down, it’s
really hard to stay healthy when your body is that run down. And it’s not just our house, there are
families all over with kids with special needs who feel the same pressures and
stresses. While you pray for us, you can
pray for them too!
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